Progeria

So recently I have been consumed learning all about Progeria.  For those of you who don't know about it (as I didn't), you can visit this website. Learn about Progeria.  Not sure how many of you know me well enough to know that being "involved" in support groups and fundraisers and such is SO not my thing.  Don't get me wrong, my heart goes out to those who are in need or who have been born disabled in some way.  However, in the past, it just wasn't for me to be involved in things as such.

With all that said, I feel like I've done a complete turn around.  About a week or so ago, I stumbled upon a Youtube video of Adalia Rose. (Click her name and you'll see the video).  I fell in love with her face and voice and wondered what caused her to appear this way.  Which led me to see other kids with the same look in other videos. So, I'm completely taken with these sweetest children that are sadly afflicted with it.  Sadly, there is no cure.

Please take a look at a few of these amazing kids that I fell in love with.  Click on their names to learn more about them.

                                         Adalia Rose, 

                                       Hayley Okines,

                                     and Zoey Delarosa. 

So I found out that in Peabody MA. there is a Progeria Chapter.  I applied to be a volunteer there.  :)  I'm very excited and hope to help out as much as possible!  I've also made the decision to cut and donate 14 inches of my hair to "Locks of Love".  I'm very excited about this and my hair dresser appointment is this Friday the 3rd of May!! YAY!!

So, thought I'd share and hoping to spread the word about this.  It certainly made me quite grateful to have healthy kids. :)